Jennifer's medical fund

[Steviedoo]

Not the news you wanted...but you will get thru this. It's ok. You can scream and cry here.
we will help you thru this somehow....

....allow yourself to breathe....

 

[luckydabberbingo]

Oh I did, and thank you. My head hurts from crying. That was the longest hour I ever spent. Information overload. I have to pay for this needle, I cant even remember what its for. I think its to boost my immune system after they effin kill it. They were asking if I prefer a pik? Like really? At first he said that I was going to receive 8 rounds of the red devil. I put my foot down on that. Big sigh.

My crappy luck of the draw that I produce the protein that produces cancer cells.

Jen when it comes to cancer dowhat the experts tell you , if it is Red Devil then do it .I know a second person who had this type of chemo and side effects not really different than any other chemo and they give you medications before the treatment to address the side effects.

 

[chuchu59]

I got called in for an early appointment to meet Oncologist and get results. Not what I wanted to hear. I cant stop crying. I am ER negative, PR negative and Her2 positive. Her2 positive means its agressive. I have to take chemo Combination of Docetaxel, carboplatin and hertecptin. So much for getting back to work. i HAVE A 50% CHANCE OF IT COMING BACK WITHOUT TREATMENT, AND 25% WITH TREATMENT. sORRY ABOUT THE CAPS, FU!!!!!!!!!!!!!!!!!!!!! CANCER, SERIOUSLY FU!

When my wife heard the diagnosis from a private surgeon (I wasnt there) she thought I was gonna die. She came back and locked herself in the toilet for half an hour. The medical fees quoted were astronomical and could potentially reach USD 150,000. Even then it was possible the cancer cells would spread to other organs. I thought I might have to quit my job right away to get my pension which would cover the meedical fees. Things turned for the better when she sought help from her former pupils(she is a teacher of more than 30 years). Some of them worked in the public sector , same as me and relayed to her that though the situation is not good it wasnt critical either. In the end, upon some referrals and much help from her pupils I got the best medical help possible and the rest is history. I am not out of the woods yet with a 50% chance of recurrence but being the ultimate gambler I am to end up on the positive side of the outcome. I have to go to 3 different hospitals virtually every other week, one for treating my stroke, one for the aftermath of removing my tunour and one for helping me to reduce the recurrence of the illness. On top of this all, I have to go to work on a daily basis to earn as much as possible for my son's education etc. If I can do it so can you. We are both gamblers and can bear the risks lol.

 

[bebo67]

Hi everyone. I am feeling a bit better today. Woke up teary eyed but it didnt last long. The whole purpose of this was to help raise funds, and I need it now more then ever. I am doing the chemo, I just have to wait for bone scan, and blood work to get done and come back. Her2 positive and double negative means it is aggressive, so I wont be going back to work just yet. Thanks for listening to my anger, tears. I will come to a happy place at some point. If you cant donate then please share? You guys have been awesome.<3

 

[geordiecolin]

It may be an idea to re-post the link to your justgiving from time to time

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[bebo67]

It may be an idea to re-post the link to your justgiving from time to time

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Thanks!

 

[Nightfly]

I just donated. I know how expensive this can get. I was diagnosed with stage 4 metastatic lung cancer 10 years ago and I beat it. The main thing is to keep a positive outlook. Wishing you the best

 

[bebo67]

I just donated. I know how expensive this can get. I was diagnosed with stage 4 metastatic lung cancer 10 years ago and I beat it. The main thing is to keep a positive outlook. Wishing you the best

Wow good for you! I am having a hard time with this right now, that HER2 positive makes things look really bad, with or without treatment, and being double negative even worse. Im going to need some counseling. Thank you for the donation I really need it right now and may you continue to stay disease free <3

 

[bebo67]

And there is always HOPE!

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[Rab62]

I got called in for an early appointment to meet Oncologist and get results. Not what I wanted to hear. I cant stop crying. I am ER negative, PR negative and Her2 positive. Her2 positive means its agressive. I have to take chemo Combination of Docetaxel, carboplatin and hertecptin. So much for getting back to work. i HAVE A 50% CHANCE OF IT COMING BACK WITHOUT TREATMENT, AND 25% WITH TREATMENT. sORRY ABOUT THE CAPS, FU!!!!!!!!!!!!!!!!!!!!! CANCER, SERIOUSLY FU!

Hi, this is my first post on this forum. I just so happened upon your post.

My sister had her2 positive breast cancer. I have studied and studied it for 4 solid years. She had the same combo of drugs you are getting. She was er positive and slightly pr positive. Also.

Maybe one thing you could ask dr about is a drug called perjeta. I'm not sure about it for your situation. Also a good website to look at is called her2 forums. They have all the latest treatments and trials you could possibly find.

My sister died in September after 4 years of fighting. I can tell you from my experience that you go with your gut. If you do t feel good about dr get a second opinion. You be in charge of you care. That is the most important thing you can do. If you have any loved ones or friends who can be an advocate that is so important.

One important thing about her2 is get a brain scan early and often. They are finding that her2 breast cancer seems to go to brain. The drugs they have work so well in the body but the brain is not as protected. ( blood brain barrier) even if you have to lie and say you are having headaches to get one done. They are starting to come around and doing brain scans more often for her2 but, not every dr believes in doing them routinely. Look up her2 and brain mets. You will see what I'm talking about. Getting it early in brain is so important.

Maybe I'm a little paranoid about that but my sister got it in brain and it was too late for her. She fought and fought and never once had a scan on brain. I am still angry about that. It was obvious looking back. Her behavior changed way before we found it. Had we found it earlier maybe she woul still be here? I don't know.

I hope I'm not upsetting you by my post, but I feel I can't just read this and not say something. this is still so fresh for me. I loved my sister so much and it miss her terribly. I can't hard,y take the loss sometimes.

If you want any more advice I am here and willing to give any info I can. Just know you are in my thought and prayers. msg me anytime.

So number one, get second or third or fourth opinion. Go with your gut. Feel comfortable with your dr.
Be assertive with your treatment. Don't feel stupid.

Her2 forums

Ask about perjeta, also vaccines. Brain scans. Her2 forums has all of this info. You wil find all the info you could want on there.

Lastly, god bless you and you are in my prayers daily. Any questions feel free to contact me.

 

[JkG]

Hi Jennifer ,
I hope that i will be able to donate to your fund soon.
I know what it is like to have to raise money to pay for treatment. My own daughter was 6 when we had the task to fundraise 50k for surgery for her in America. She is doing great now, her spasticity is completely removed.
She still has mobility issues so uses crutches (but better than the wheelchair she was confined to)and with decent strength training to build up her muscles so she can function better but unfortunately here in Ireland the lack of care and attention given to children with disabilities is appalling. I stopped fundraising about three years ago because i didn't want to ask people to help anymore. I guess people can only do/help so much.

Anyway I'm rambling but as someone who has been there trying to raise funds for health issues I am wishing you all the best you sound like such a brave and strong lady, and i have no doubt you will beat this.
Try to get your hands on some cbd/THC oil as well, very beneficial for fighting cancer.
I myself am going to be using them soon as i suffer with severe fibromylagia and Myalgic Encephalitis which is a bloody slow torturous death to be honest as it never goes away ! No cure, here for life.
But nothing compared to what you are facing

I wish you all the love and hope in the world xx

JKG xx

 

[bebo67]

Hi, this is my first post on this forum. I just so happened upon your post.

My sister had her2 positive breast cancer. I have studied and studied it for 4 solid years. She had the same combo of drugs you are getting. She was er positive and slightly pr positive. Also.

Maybe one thing you could ask dr about is a drug called perjeta. I'm not sure about it for your situation. Also a good website to look at is called her2 forums. They have all the latest treatments and trials you could possibly find.

My sister died in September after 4 years of fighting. I can tell you from my experience that you go with your gut. If you do t feel good about dr get a second opinion. You be in charge of you care. That is the most important thing you can do. If you have any loved ones or friends who can be an advocate that is so important.

One important thing about her2 is get a brain scan early and often. They are finding that her2 breast cancer seems to go to brain. The drugs they have work so well in the body but the brain is not as protected. ( blood brain barrier) even if you have to lie and say you are having headaches to get one done. They are starting to come around and doing brain scans more often for her2 but, not every dr believes in doing them routinely. Look up her2 and brain mets. You will see what I'm talking about. Getting it early in brain is so important.

Maybe I'm a little paranoid about that but my sister got it in brain and it was too late for her. She fought and fought and never once had a scan on brain. I am still angry about that. It was obvious looking back. Her behavior changed way before we found it. Had we found it earlier maybe she woul still be here? I don't know.

I hope I'm not upsetting you by my post, but I feel I can't just read this and not say something. this is still so fresh for me. I loved my sister so much and it miss her terribly. I can't hard,y take the loss sometimes.

If you want any more advice I am here and willing to give any info I can. Just know you are in my thought and prayers. msg me anytime.

So number one, get second or third or fourth opinion. Go with your gut. Feel comfortable with your dr.
Be assertive with your treatment. Don't feel stupid.

Her2 forums

Ask about perjeta, also vaccines. Brain scans. Her2 forums has all of this info. You wil find all the info you could want on there.

Lastly, god bless you and you are in my prayers daily. Any questions feel free to contact me.

Welcome to Casinomeister, Im sorry your first introductory was me. Everyone here is amazing, the posts are informative, Casinomeister and Max are amazing. And I hope you get to meet amazing life long friends. I am so sorry about your sister, I am sorry that you both had to go through it, and that you still are. It is traumatizing, there is no getting around that. Since last Wed, I have cried, screamed, denial, cried, been pro-active, more denial. And like you I have read none stop about her2. Sometimes your brain needs a break from google. I have learned what foods def trigger it, and guess what? I was eating those DO NOT foods almost daily. I have learned I could be dead with or without treatment in 5 years, the chances go down dramatically after that. I have 2 adult kids that I love beyond words, beyond infinity, as I type this I am getting teary eyed. My fight is for more years with these guys. Dying at the age of 55 is NOT an option! Funny you should mention about a second opinion. A few things stood out for me.
1) I asked my family doctor if I could get a different Oncologist, and she said she has never had the request before, and doesnt know if she has the authority. I have had a great 26 year relationship with her, and trust her with my life. The reason I asked was because the Herceptin causes well known heart problems, and not once did the Oncologist suggest heart testing. I have to get a bone scan done in a couple of weeks once my breast heals, but not once did he say anything about my heart. I know that it can spread to the bone, lungs and brain. So why not a lung scan too? I stumbled across perjeta when I was doing research. Why was that not offered to me? I brought this all up with my family doctor and go see her on the 24th.
2) Wheres the counseling that is suppose to be offered at the centre? Oh there is but depends on your financial status. hmmmm!
3) I also read that certain parts of your breast will read differently. One part can read her2 positive, another sample from different area can read negative. Another .....hmmm

I have fought most of my adult life, it has never been easy. Some of it my own doing, most of it not.
I just want it to end, but not in death.
Oh and another thing. In all of your research, were you able to find out when this her2 + and - was discovered? Has the morbidity rates changed in a noticeable way? For instance if it was found the mid 90's, there should be a greater change, on the presumption that they can treat it with these cocktails of life altering drugs. I asked the Oncologist this and he said he had not data before Herceptin started mid 90's. Really????? What Oncologist doesnt do research?

 

[bebo67]

Hi Jennifer ,
I hope that i will be able to donate to your fund soon.
I know what it is like to have to raise money to pay for treatment. My own daughter was 6 when we had the task to fundraise 50k for surgery for her in America. She is doing great now, her spasticity is completely removed.
She still has mobility issues so uses crutches (but better than the wheelchair she was confined to)and with decent strength training to build up her muscles so she can function better but unfortunately here in Ireland the lack of care and attention given to children with disabilities is appalling. I stopped fundraising about three years ago because i didn't want to ask people to help anymore. I guess people can only do/help so much.

Anyway I'm rambling but as someone who has been there trying to raise funds for health issues I am wishing you all the best you sound like such a brave and strong lady, and i have no doubt you will beat this.
Try to get your hands on some cbd/THC oil as well, very beneficial for fighting cancer.
I myself am going to be using them soon as i suffer with severe fibromylagia and Myalgic Encephalitis which is a bloody slow torturous death to be honest as it never goes away ! No cure, here for life.
But nothing compared to what you are facing

I wish you all the love and hope in the world xx

JKG xx

Congrats with your daughter! Nothing better then reading a story about a child being able to over come health issues. I am really happy for her <3

 

[chuchu59]

Hi Jennifer ,
I hope that i will be able to donate to your fund soon.
I know what it is like to have to raise money to pay for treatment. My own daughter was 6 when we had the task to fundraise 50k for surgery for her in America. She is doing great now, her spasticity is completely removed.
She still has mobility issues so uses crutches (but better than the wheelchair she was confined to)and with decent strength training to build up her muscles so she can function better but unfortunately here in Ireland the lack of care and attention given to children with disabilities is appalling. I stopped fundraising about three years ago because i didn't want to ask people to help anymore. I guess people can only do/help so much.

Anyway I'm rambling but as someone who has been there trying to raise funds for health issues I am wishing you all the best you sound like such a brave and strong lady, and i have no doubt you will beat this.
Try to get your hands on some cbd/THC oil as well, very beneficial for fighting cancer.
I myself am going to be using them soon as i suffer with severe fibromylagia and Myalgic Encephalitis which is a bloody slow torturous death to be honest as it never goes away ! No cure, here for life.
But nothing compared to what you are facing

I wish you all the love and hope in the world xx

JKG xx

Hi JKG,

I am now still confined to my wheelchair due to a stroke 6 years ago. The spasticity hinders my left arm, shoulder and hand making balance difficult. Coupled with my weak left leg, I cannot walk without touching the wall so I am always indoors except going for work. Any tips you can give me in diminishing my spasticity? Once this is gone, I think I should be able to walk freely. Thanks.

 

[bebo67]

 

[bebo67]

Everyone has been so great. I am posting this here and on my Facebook. I am trying to get my daughter down here so she can be here for all the testing, and if I am physically ready, then to start chemo. Mentally ready? I am not so sure. My daughters family is on a very tight budget, her being here is more then I can ask for. She lives 3 cities away and an extra mouth to feed. I understand if people are strapped and I feel like I am asking to much, I really do. If you can't and have a Facebook maybe you can share? Im really sorry. Thank you!

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[Jasminebed]

Let your daughter do what she can for you. She loves you and wants you for years to come. You get better, and you'll be there for her again.

I'm far from unsympathatic to your plight, but I'm not going to share on my social network. There are so many people in similar boats nearly daily, and most of my friend do contribute what they can and share what they can. But I did not contribute to the fund for the guy I drank with 25 years ago, who's still a close friend of the guy I chat with weekly and go to a concert with 3 or 4 times a year. Cancer took enough he needs appointments in another city.

I had no money when a very close friend was living in Barrie and having to see specialists in Toronto. He was not asking on social media, but I do know other friends and family helped.

Nor the new mom of the premie who was my kid's friend in her early 20s, and there is no funding to care for her oldest while she's at the hospital. But I might still, even though I had little, I helped my kid with childcare for her first to be the the second premie.

Every day I see pleas for help, and I know they are genuine. But we cannot answer all of them, and I won't ask my friends on behalf of a virtual friend.

But I will go make a small donation now.

Let your kids help you. They are not kids anymore, they are grownups. You helped them, they want to help now. Let them, they need to feel they are part of Team Jenn.

 

[bebo67]

Let your daughter do what she can for you. She loves you and wants you for years to come. You get better, and you'll be there for her again.

I'm far from unsympathatic to your plight, but I'm not going to share on my social network. There are so many people in similar boats nearly daily, and most of my friend do contribute what they can and share what they can. But I did not contribute to the fund for the guy I drank with 25 years ago, who's still a close friend of the guy I chat with weekly and go to a concert with 3 or 4 times a year. Cancer took enough he needs appointments in another city.

I had no money when a very close friend was living in Barrie and having to see specialists in Toronto. He was not asking on social media, but I do know other friends and family helped.

Nor the new mom of the premie who was my kid's friend in her early 20s, and there is no funding to care for her oldest while she's at the hospital. But I might still, even though I had little, I helped my kid with childcare for her first to be the the second premie.

Every day I see pleas for help, and I know they are genuine. But we cannot answer all of them, and I won't ask my friends on behalf of a virtual friend.

But I will go make a small donation now.

Let your kids help you. They are not kids anymore, they are grownups. You helped them, they want to help now. Let them, they need to feel they are part of Team Jenn.

Im sorry. I didnt mean to offend anyone. I dont know how to ask for help properly. Its not something I do on a regular basis. Thank you Jas, your right every little bit helps. I felt bad asking to begin with.
If this is starting to annoy people, please let me know and I can have it taken down.
A little information about my kids. My son Grant is 23 and in his last year at Fleming in Peterborough. He is taking Custom Services/Border Patrol. He takes the Go train home as often as he can on weekends, but he is living off OSAP and Grants.
My daughter Kayla is 29, common law, and I have a 9 year old Grandson. They live in Guelph and live off his income. She started a Gofund me and has raised 40 dollars.

 

[Jasminebed]

Jenn, the only thing that upsets me is being asked to share it, I am glad I've been able to help a little.

 

[bebo67]

Jenn, the only thing that upsets me is being asked to share it, I am glad I've been able to help a little.

I am really sorry. I don't know the proper protocol for doing this. Here is my son <3

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And thank you Jas

 

[The Viking]

Wishing you all the best and a speedy recovery Jenn.
with one of the best and emotional fuck cancer anthem ever.

 

[bebo67]

Wishing you all the best and a speedy recovery Jenn.
with one of the best and emotional fuck cancer anthem ever.


Thanks! Emotional is right, I couldn't watch it all. It made me cry. Kids are so much braver then adults. But yes FUCK YOU CANCER!!!!!!!!!!!!!!

 

[bebo67]

I really hate my Hospital and Oncologist. He seems like a greasy sales man. My Hospital is under investigation by the Ministry and he was brought in a week before I saw him, hence the earlier appointment. Feeling a bit better this week I have been researching like crazy on different things. The one Hospital I keep getting pulled back to is this one.

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Also I want to point out, I even sent Casinomeister a message as I wasn't sure how to address this. I suck at promoting, but I have the gift of gab. My gift of gab has turned this into a book. And I love the support that is why I keep writing, But the original goal has being lost. And that was to raise funds. And I don't want to lose the momentum. I don't know when I will be getting back to work. After all my safety check testing, I will be starting my chemo. It will be 6 sessions, once every 3 weeks. Wouldn't it be cool if I could work part time and do chemo? I wonder if its doable. See there I go again. I need a pet.lol. Outside of work I have kept myself isolated the last 7 years. But that is going to have to change. Anyways once a week I will post the link, I have it on Facebook, and trying to figure out how to post it on my pintrest. If anyone can think of something , please let me know. Thanks for being part of this horrible journey with me!

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[Dinahnana]

I really hate my Hospital and Oncologist. He seems like a greasy sales man. My Hospital is under investigation by the Ministry and he was brought in a week before I saw him, hence the earlier appointment. Feeling a bit better this week I have been researching like crazy on different things. The one Hospital I keep getting pulled back to is this one.

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Also I want to point out, I even sent Casinomeister a message as I wasn't sure how to address this. I suck at promoting, but I have the gift of gab. My gift of gab has turned this into a book. And I love the support that is why I keep writing, But the original goal has being lost. And that was to raise funds. And I don't want to lose the momentum. I don't know when I will be getting back to work. After all my safety check testing, I will be starting my chemo. It will be 6 sessions, once every 3 weeks. Wouldn't it be cool if I could work part time and do chemo? I wonder if its doable. See there I go again. I need a pet.lol. Outside of work I have kept myself isolated the last 7 years. But that is going to have to change. Anyways once a week I will post the link, I have it on Facebook, and trying to figure out how to post it on my pintrest. If anyone can think of something , please let me know. Thanks for being part of this horrible journey with me!

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Not sure if this helps any but these are the instructions pages on Pinterest with regards to go fund me Jennifer

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Good luck, I know chemo sucks but you will get through it and keep positive. Before you know it you will be all better and the treatment will be worth it in the end.

Edit: If you have an Instagram account you can check this out and maybe add it on there:

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If you don't have an Instagram account you can always create one.

 

[bebo67]

Not sure if this helps any but these are the instructions pages on Pinterest with regards to go fund me Jennifer

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Good luck, I know chemo sucks but you will get through it and keep positive. Before you know it you will be all better and the treatment will be worth it in the end.

Edit: If you have an Instagram account you can check this out and maybe add it on there:

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If you don't have an Instagram account you can always create one.

Awesome. Thanks!