Jennifer's medical fund

[bebo67]

I just want to give a big shout out to Jazzy and Dan. Thank you for the free weekend Battle Roll <3

 

[geordiecolin]

I just want to give a big shout out to Jazzy and Dan. Thank you for the free weekend Battle Roll <3

That is great. Distract yourself all weekend. I am so looking for positives for you. I have way too many people dealing with this right now. So many in the past. I include a brother and a sister who are dealing with the uncertainty of this right now.
I will continue to give my small amounts. I have just looked at the fund and it has gone cold

 

[bebo67]

That is great. Distract yourself all weekend. I am so looking for positives for you. I have way too many people dealing with this right now. So many in the past. I include a brother and a sister who are dealing with the uncertainty of this right now.
I will continue to give my small amounts. I have just looked at the fund and it has gone cold

Your right it has, I'm trying not to panic because it's the end of the month next week. But the reality is, that its the end of the month for everyone. I don't know what to do. I have been exploring all my options the last few days. I did my income tax today and took a huge loss, but all that did was put me in a different bracket. At least I will get some money next year. Lesson for everyone. Always put a little away. I'm tired and feel like crap today, and going to bed soon. I know your an atheist, but I will pray that your siblings get better. Thank you for being a friend. Goodnight

 

[bebo67]

That is great. Distract yourself all weekend. I am so looking for positives for you. I have way too many people dealing with this right now. So many in the past. I include a brother and a sister who are dealing with the uncertainty of this right now.
I will continue to give my small amounts. I have just looked at the fund and it has gone cold

Laying in bed, wide awake and cant sleep. I got thinking outside of Videoslots, and Trada. I'm surprised more Casinos haven't come forward. Not that I am kicking a gift horse in the mouth, because I'm not. I went to one Casino that I played at faithfully for 10 years, and they shall remain nameless, but their response was if we gave to everyone we would be broke, Its gone beyond dead. Three visits all weekend it says. . I see my Surgeon for final visit Wed, My chemo starts on the 18th. And on the 13th I have a nurse coming in to teach me how to give myself needles. This should be fun, I have shaky hands. But I have to give myself a needle everyday , 5 days before treatments, to boost my t cells. Ughhh. Im going to go try and sleep.

 

[Jd666]

Laying in bed, wide awake and cant sleep. I got thinking outside of Videoslots, and Trada. I'm surprised more Casinos haven't come forward. Not that I am kicking a gift horse in the mouth, because I'm not. I went to one Casino that I played at faithfully for 10 years, and they shall remain nameless, but their response was if we gave to everyone we would be broke, Its gone beyond dead. Three visits all weekend it says. . I see my Surgeon for final visit Wed, My chemo starts on the 18th. And on the 13th I have a nurse coming in to teach me how to give myself needles. This should be fun, I have shaky hands. But I have to give myself a needle everyday , 5 days before treatments, to boost my t cells. Ughhh. Im going to go try and sleep.

Best of Luck Jennifer.

Are there any cancer charities in Canada which you maight be able to get a grant from?
We got a £300 grant from Macmillan and another £200 from another charity.
Got an electric adjustable bed with it

I was a full time carer for my wife for the last few years of her life.

The UK government gave me around £60 carers allowance a week to look after her.
I also qualified for Income support but then the government deducted the amount of carers allowance from my income support.

Dont get me wrong, but I would have done it for nothing if I could have done.

Unfortunatley, for the last 6 weeks of her life, she had to go into a care home, which probably would have cost £700+ a week.

She had three different courses of Chemo and one course of radiotherapy.
The radiotherapy ended up being the best course of treatment as it stopped the growth for over 18 months.

The tumour was inoperable because of where it was positioned in the brain, trying to remove it would have been a 95% chance of paralysis.

As I said, dont get me wrong as yours is different and is very beatable

I ended up raising just over £2150 for a brain tumour charity.
Some was raised on Casinomeister in a quiz which Dunover hosted and some casinos generously donated prizes, I came joint first IIRC but came second in a tie break draw.

https://www.casinomeister.com/forum...7691-10k-twilight-walk-york-4.html#post724625

 

[bebo67]

Best of Luck Jennifer.

Are there any cancer charities in Canada which you maight be able to get a grant from?
We got a £300 grant from Macmillan and another £200 from another charity.
Got an electric adjustable bed with it

I was a full time carer for my wife for the last few years of her life.

The UK government gave me around £60 carers allowance a week to look after her.
I also qualified for Income support but then the government deducted the amount of carers allowance from my income support.

Dont get me wrong, but I would have done it for nothing if I could have done.

Unfortunatley, for the last 6 weeks of her life, she had to go into a care home, which probably would have cost £700+ a week.

She had three different courses of Chemo and one course of radiotherapy.
The radiotherapy ended up being the best course of treatment as it stopped the growth for over 18 months.

The tumour was inoperable because of where it was positioned in the brain, trying to remove it would have been a 95% chance of paralysis.

As I said, dont get me wrong as yours is different and is very beatable

I ended up raising just over £2150 for a brain tumour charity.
Some was raised on Casinomeister in a quiz which Dunover hosted and some casinos generously donated prizes, I came joint first IIRC but came second in a tie break draw.

https://www.casinomeister.com/forum...7691-10k-twilight-walk-york-4.html#post724625

Thanks. I am very sorry to hear about your wife. Life can be cruel. Mine is an aggressive form, I am her2 positive. I have looked everywhere online. I found one that might help but I am waiting for my assesment papers from Revenue Canada, and since its Tax time that can take a while. And congrats on being able to raise.

 

[bebo67]

So today I am going over my paperwork, getting ready for everything. One of the things I have to do pre chemo is a needle called Neulasta, this is to boost my tcells up so I don't get secondary infections. Well because we all know what chemo does. Check this out......

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Look under Neulosta, the Ontario Government doesnt fund it!!!!!!!!
I was given a phone number to call " The Victory" program, and they will only help if you have private insurance ( they will pick up some of the cost).
The cost of this you may ask? 3500.00. I don't know whether to laugh, cry, scream. Seriously what do other patients do? Cancer has to be the biggest money making piece of crap I ever heard of!

 

[rena35]

I don't know if you can travel but at least here in the USA they provide treatment and help. My brother past last Easter of stage 4 lung cancer. He was a Vet and they helped him a lot. I hope things work out. You are in my thoughts.

 

[bebo67]

I don't know if you can travel but at least here in the USA they provide treatment and help. My brother past last Easter of stage 4 lung cancer. He was a Vet and they helped him a lot. I hope things work out. You are in my thoughts.

Thanks. I just want this nightmare to be over! I called the city to see if they can help. Just plain crazy. Do they want the poor to die? I can't go on Disability because by the time I am approved my treatments will be over and hopefully back to work.

 

[bebo67]

Thanks. I just want this nightmare to be over! I called the city to see if they can help. Just plain crazy. Do they want the poor to die? I can't go on Disability because by the time I am approved my treatments will be over and hopefully back to work.

My apologies. Sorry to hear about your brother. May he RIP. Stupid cancer

 

[Jasminebed]

Try contacting the drug manufacturer.

And have you talked with your treatment team? You can't be the only one in this boat. It might just mean having it administered in hospital, or prescribing an alternate drug that is covered.

Also, talk to your pharmacist. They may know of other programs, or know what code your doctor needs to use in order for it to be covered. There is sometimes paperwork to be completed to have something covered that ordinarily is not.

My advice is apply for disability. Even if it doesn't come in until after you are back to work, do you get back payments from the time of application. I'm sure the money will come in handy to clear debts. You may also still qualify for drug coverage even if working until such time as your plan might kick in.

 

[bebo67]

Try contacting the drug manufacturer.

And have you talked with your treatment team? You can't be the only one in this boat. It might just mean having it administered in hospital, or prescribing an alternate drug that is covered.

Also, talk to your pharmacist. They may know of other programs, or know what code your doctor needs to use in order for it to be covered. There is sometimes paperwork to be completed to have something covered that ordinarily is not.

My advice is apply for disability. Even if it doesn't come in until after you are back to work, do you get back payments from the time of application. I'm sure the money will come in handy to clear debts. You may also still qualify for drug coverage even if working until such time as your plan might kick in.

I called the pharmacy and the Oncology Nurse. The pharmacist suggested the Oncologist and the Onc Nurse gave me Victory's phone number. I called OW this aft, and waiting to hear back from the worker. My day started off alright, was NOT expecting this. I asked about getting the shots in the Hospital and she said it has to be done 5 days before treatment. I really hate this hospital. They seem like money grubers! I asked for counseling through the centre and you have to pay for it. Really? Her words were its available depending on your income. So my family doctor said she was going to try and find me something. I see her on Friday. Deep breath. Thanks Jass. You have been my pillar. I will contact the manufacturer tomorrow.

 

[bebo67]

Try contacting the drug manufacturer.

And have you talked with your treatment team? You can't be the only one in this boat. It might just mean having it administered in hospital, or prescribing an alternate drug that is covered.

Also, talk to your pharmacist. They may know of other programs, or know what code your doctor needs to use in order for it to be covered. There is sometimes paperwork to be completed to have something covered that ordinarily is not.

My advice is apply for disability. Even if it doesn't come in until after you are back to work, do you get back payments from the time of application. I'm sure the money will come in handy to clear debts. You may also still qualify for drug coverage even if working until such time as your plan might kick in.

I spent all night digging around. First one. The manufacturer Of Neulasta? They are the ones that offer the Victory Program. I didnt notice until I read the back of the booklet my Oncologist gave me on it, and its in the small print. When I went to the first appointment, it was very overwhelming, getting my results, what it meant and treatment plan all at once. They even wanted to put my pic in that day. I had papers shoved at me, and I remember him saying that I would need 5 injections, one a day. 5 days before treatment. He would call my pharmacy. I thought was the Neulasta ( still not sure) because that was the booklet he gave me.
Secondly. I found another one called Neupogen. This one isnt covered unless by extraordinary cases and its through Long Term Care. This is copied from their website. To much info, about other drugs so I just copied and pasted .....Effective date February 25, 2016
01968017 Neupogen 300mcg/mL 1mL Vial Injection 173.1890
09853464 Neupogen 480mcg/1.6mL 1.6mL Vial Injection 277.1020
So if by chance it doesnt get covered at least its cheaper. I'm exhausted, going to call it a night. I have my last Surgeon appointment tomorrow morning, and then I will tackle this again

PS. Wynn has a 12% popular vote right now. She really needs to go!

 

[bebo67]

* Update.Woohoo!!! Saw the Surgeon this morning, told him about the Brantford Cancer Clinic, and how the Oncologist wasn't ordering important tests ( I had to go through my GP), how radiation was NOT an option, funding etc. His jaw hit the floor, radiation MUST be done. He is referring me to Princess Margaret Cancer Hospital in Toronto. Listed in the top 4 in the world. :notworthy:notworthy So happy right now!

 

[geordiecolin]

* Update.Woohoo!!! Saw the Surgeon this morning, told him about the Brantford Cancer Clinic, and how the Oncologist wasn't ordering important tests ( I had to go through my GP), how radiation was NOT an option, funding etc. His jaw hit the floor, radiation MUST be done. He is referring me to Princess Margaret Cancer Hospital in Toronto. Listed in the top 4 in the world. :notworthy:notworthy So happy right now!

That sounds like a great bit of news. I hope that the counselling goes well too

 

[Dinahnana]

* Update.Woohoo!!! Saw the Surgeon this morning, told him about the Brantford Cancer Clinic, and how the Oncologist wasn't ordering important tests ( I had to go through my GP), how radiation was NOT an option, funding etc. His jaw hit the floor, radiation MUST be done. He is referring me to Princess Margaret Cancer Hospital in Toronto. Listed in the top 4 in the world. :notworthy:notworthy So happy right now!

This is great news. Great that you have a fantastic surgeon willing to go that extra mile.

 

[bebo67]

That sounds like a great bit of news. I hope that the counselling goes well too

Thanks! I will know when I see my GP on Friday! I am so happy, finally some good news! I know the level of care will be unbelievable

 

[bebo67]

This is great news. Great that you have a fantastic surgeon willing to go that extra mile.

Thank you! I am one happy camper right now.

 

[bebo67]

Hi everyone. I am part of a support group, Breast Cancer Sisters. Amazing bunch of women, ages from 21-60 something. The administrator has been working on a Youtube all week and posted today. I wanted to share with everyone, some of these ladies have become my virtual friends and are on my Facebook. <3

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[Steviedoo]

Hey
I was speaking to one my friends who happens to be graduating pharmacist in Ontario. He mentioned a program called the trillium drug fund for people who can't afford meds when undergoing treatment. dont know how it works....there is a cost to it....but might be better than paying for all the meds you need....or maybe you have looked into it....anyway....

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[bebo67]

Hey
I was speaking to one my friends who happens to be graduating pharmacist in Ontario. He mentioned a program called the trillium drug fund for people who can't afford meds when undergoing treatment. dont know how it works....there is a cost to it....but might be better than paying for all the meds you need....or maybe you have looked into it....anyway....

You do not have permission to view link Log in or register now.

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Wow, that is crazy. I was thinking about you last night, and wondering where you have been. And this morning I was with my pharmacy getting help with filling out the forms for exactly that! I check my email when I got back and here you are I also went to the local disability office to get the package for disability. Apparently they cover a whole lot of stuff under their drug card. I have to fill out a portion, then get Princess Margaret to fill out the rest. It will take a while I am sure, but its like Jassy said. I could get back pay. They told me that it could take up to a year, and it use to take 2 years for approval How are you doing, and thank you!

 

[bebo67]

Hi everyone, just posting an update. I have been in " getting things done" mode, while I am still able. I just wanted to give a heads up. My internet and phone is being disconnected Thursday, as I have been unable to keep up with the payments. I have found a new provider that didnt require money up front, but unfortunately it will take 10 business days for it to be up and running. So I wont be around. It will make things tricky for appointments, but it will be doable. I am still waiting to here from Princess Margaret Hospital as when I can see them, and get the ball rolling for tests and treatments. I have forward all calls to my neighbor. I want to thank everyone, and I mean everyone who has been part of this journey with me.

 

[Steviedoo]

Wow, that is crazy. I was thinking about you last night, and wondering where you have been. And this morning I was with my pharmacy getting help with filling out the forms for exactly that! I check my email when I got back and here you are I also went to the local disability office to get the package for disability. Apparently they cover a whole lot of stuff under their drug card. I have to fill out a portion, then get Princess Margaret to fill out the rest. It will take a while I am sure, but its like Jassy said. I could get back pay. They told me that it could take up to a year, and it use to take 2 years for approval How are you doing, and thank you!

Wow. Well that's coincidental for sure. And yes even if it takes a bit of time. Jazzy is very wise.
I've been busy writing and trying not to gamble so much.
Keep well and breathe.
And hope internet will be up and running sooner than ten days.

 

[bebo67]

Wow. Well that's coincidental for sure. And yes even if it takes a bit of time. Jazzy is very wise.
I've been busy writing and trying not to gamble so much.
Keep well and breathe.
And hope internet will be up and running sooner than ten days.

My water is up for disconnection too Man oh man. Trying to keep up with rent and everything else has been a challenge, plus eat. My disconnection just came in the mail this aft. I have until Monday. Time for some more phone calls. Wish me luck, and happy writing Writing is good for the soul.




Just breath!

 

[bebo67]

I thought I would add some humour. Things can only get better right?

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