bebo67
RIP Bebo
- Joined
- Jun 22, 2013
- Location
- Ontario Canada
I just want to give a big shout out to Jazzy and Dan. Thank you for the free weekend Battle Roll <3
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I just want to give a big shout out to Jazzy and Dan. Thank you for the free weekend Battle Roll <3
That is great. Distract yourself all weekend. I am so looking for positives for you. I have way too many people dealing with this right now. So many in the past. I include a brother and a sister who are dealing with the uncertainty of this right now.
I will continue to give my small amounts. I have just looked at the fund and it has gone cold

That is great. Distract yourself all weekend. I am so looking for positives for you. I have way too many people dealing with this right now. So many in the past. I include a brother and a sister who are dealing with the uncertainty of this right now.
I will continue to give my small amounts. I have just looked at the fund and it has gone cold

Laying in bed, wide awake and cant sleep. I got thinking outside of Videoslots, and Trada. I'm surprised more Casinos haven't come forward. Not that I am kicking a gift horse in the mouth, because I'm not. I went to one Casino that I played at faithfully for 10 years, and they shall remain nameless, but their response was if we gave to everyone we would be broke, Its gone beyond dead. Three visits all weekend it says. . I see my Surgeon for final visit Wed, My chemo starts on the 18th. And on the 13th I have a nurse coming in to teach me how to give myself needles. This should be fun, I have shaky hands. But I have to give myself a needle everyday , 5 days before treatments, to boost my t cells. Ughhh. Im going to go try and sleep.![]()
Thanks. I am very sorry to hear about your wife. Life can be cruel. Mine is an aggressive form, I am her2 positive. I have looked everywhere online. I found one that might help but I am waiting for my assesment papers from Revenue Canada, and since its Tax time that can take a while. And congrats on being able to raise.Best of Luck Jennifer.
Are there any cancer charities in Canada which you maight be able to get a grant from?
We got a £300 grant from Macmillan and another £200 from another charity.
Got an electric adjustable bed with it
I was a full time carer for my wife for the last few years of her life.
The UK government gave me around £60 carers allowance a week to look after her.
I also qualified for Income support but then the government deducted the amount of carers allowance from my income support.
Dont get me wrong, but I would have done it for nothing if I could have done.
Unfortunatley, for the last 6 weeks of her life, she had to go into a care home, which probably would have cost £700+ a week.
She had three different courses of Chemo and one course of radiotherapy.
The radiotherapy ended up being the best course of treatment as it stopped the growth for over 18 months.
The tumour was inoperable because of where it was positioned in the brain, trying to remove it would have been a 95% chance of paralysis.
As I said, dont get me wrong as yours is different and is very beatable
I ended up raising just over £2150 for a brain tumour charity.
Some was raised on Casinomeister in a quiz which Dunover hosted and some casinos generously donated prizes, I came joint first IIRC but came second in a tie break draw.
https://www.casinomeister.com/forum...7691-10k-twilight-walk-york-4.html#post724625




I don't know if you can travel but at least here in the USA they provide treatment and help. My brother past last Easter of stage 4 lung cancer. He was a Vet and they helped him a lot. I hope things work out. You are in my thoughts.
Thanks. I just want this nightmare to be over! I called the city to see if they can help. Just plain crazy. Do they want the poor to die? I can't go on Disability because by the time I am approved my treatments will be over and hopefully back to work.
Stupid cancerTry contacting the drug manufacturer.
And have you talked with your treatment team? You can't be the only one in this boat. It might just mean having it administered in hospital, or prescribing an alternate drug that is covered.
Also, talk to your pharmacist. They may know of other programs, or know what code your doctor needs to use in order for it to be covered. There is sometimes paperwork to be completed to have something covered that ordinarily is not.
My advice is apply for disability. Even if it doesn't come in until after you are back to work, do you get back payments from the time of application. I'm sure the money will come in handy to clear debts. You may also still qualify for drug coverage even if working until such time as your plan might kick in.
Try contacting the drug manufacturer.
And have you talked with your treatment team? You can't be the only one in this boat. It might just mean having it administered in hospital, or prescribing an alternate drug that is covered.
Also, talk to your pharmacist. They may know of other programs, or know what code your doctor needs to use in order for it to be covered. There is sometimes paperwork to be completed to have something covered that ordinarily is not.
My advice is apply for disability. Even if it doesn't come in until after you are back to work, do you get back payments from the time of application. I'm sure the money will come in handy to clear debts. You may also still qualify for drug coverage even if working until such time as your plan might kick in.


* Update.Woohoo!!! Saw the Surgeon this morning, told him about the Brantford Cancer Clinic, and how the Oncologist wasn't ordering important tests ( I had to go through my GP), how radiation was NOT an option, funding etc. His jaw hit the floor, radiation MUST be done. He is referring me to Princess Margaret Cancer Hospital in Toronto. Listed in the top 4 in the world. :notworthy:notworthySo happy right now!
![]()

This is great news. Great that you have a fantastic surgeon willing to go that extra mile.* Update.Woohoo!!! Saw the Surgeon this morning, told him about the Brantford Cancer Clinic, and how the Oncologist wasn't ordering important tests ( I had to go through my GP), how radiation was NOT an option, funding etc. His jaw hit the floor, radiation MUST be done. He is referring me to Princess Margaret Cancer Hospital in Toronto. Listed in the top 4 in the world. :notworthy:notworthySo happy right now!
![]()
That sounds like a great bit of news. I hope that the counselling goes well too![]()

This is great news. Great that you have a fantastic surgeon willing to go that extra mile.

Hey
I was speaking to one my friends who happens to be graduating pharmacist in Ontario. He mentioned a program called the trillium drug fund for people who can't afford meds when undergoing treatment. dont know how it works....there is a cost to it....but might be better than paying for all the meds you need....or maybe you have looked into it....anyway....
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I also went to the local disability office to get the package for disability. Apparently they cover a whole lot of stuff under their drug card. I have to fill out a portion, then get Princess Margaret to fill out the rest. It will take a while I am sure, but its like Jassy said. I could get back pay. They told me that it could take up to a year, and it use to take 2 years for approval
How are you doing, and thank you!
Wow, that is crazy. I was thinking about you last night, and wondering where you have been. And this morning I was with my pharmacy getting help with filling out the forms for exactly that! I check my email when I got back and here you areI also went to the local disability office to get the package for disability. Apparently they cover a whole lot of stuff under their drug card. I have to fill out a portion, then get Princess Margaret to fill out the rest. It will take a while I am sure, but its like Jassy said. I could get back pay. They told me that it could take up to a year, and it use to take 2 years for approval
How are you doing, and thank you!
Wow. Well that's coincidental for sure. And yes even if it takes a bit of time. Jazzy is very wise.
I've been busy writing and trying not to gamble so much.
Keep well and breathe.
And hope internet will be up and running sooner than ten days.
Man oh man. Trying to keep up with rent and everything else has been a challenge, plus eat. My disconnection just came in the mail this aft. I have until Monday. Time for some more phone calls. Wish me luck, and happy writing
Writing is good for the soul. 

I thought I would add some humour. Things can only get better right?
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Bebo67 how are you doing now? I just saw this! If you need any help I'll have a little extra money next week when I get paid and you're welcome to it if you need it for anything. Going through all of this you shouldn't have to worry about money too! I'll make sure I check here more often. I hope you are getting better and keeping positive. Hugs!!!
Kylie


Or if you believe in God try to sign a hymn to boost your spirits. Go to youtube, type 'O Jesus I have promised' and then sign the hymn. It gave me a lot of confidence before my operation last December. Good Luck Dear.

My water is up for disconnection tooMan oh man. Trying to keep up with rent and everything else has been a challenge, plus eat. My disconnection just came in the mail this aft. I have until Monday. Time for some more phone calls. Wish me luck, and happy writing
Writing is good for the soul.
Just breath!
I just left a donation for you Jennifer and hopefully things will get better real soon. Maybe if you call the water company and explain your situation maybe they can do something for you? Some companies can be very thoughtful of people in rough situations like yours. I wish you all the best.

Thank you! I am back online, and working on the water issue. Calling my surgeon tomorrow to see if the date and time has come in yet for Princess Margaret Hospital.![]()
Just yesterday the Princess Margaret hospital of Hongkong made a big blunder. Hopefully the hospital with the same name in your country will do better. Provide us with updates whenever possible.
It doesnt matter. My surgeon got a letter from them today, and " due to the amount of patients and referrals they receive, they have had to set criteria from whom the accept. This includes demographics, type and stage of Cancer" blah blah blah blah. They will not take me on as a patient. To say I am frustrated and upset right now, would be putting it mildly. I do not trust the centre here. It is not me being a difficult patient. The oncologist here would not order very important tests to make sure I will be safe. I went to my family Doctor and she wouldn't because she doesnt know what tests are needed. I am not a Doctor but I know. I am not healthy right now, I am severely underweight ( Jazzy can vouch for me. I sent her a picture of me that my daughter took after the surgery, she ( my daughter)wanted a picture of me being blue from the dye) I'm trying so hard to get my weight back up.
Oncologist: I would order heart test, but I think you will be fine.
Me: Wtf?
Me: Can I have a full Mastectomy?
Oncologist: No
Me: Radiation?
Oncologist: No
Me: All my lymph nodes removed? ( now I am just playing him because I think he is an idiot)
Oncologist: No
Oncologist nurse comes rushing in and starts taking blood from my right arm. I'm telling this nurse she cant take from that arm because I will get lymphdimeia. You cant do blood pressure or blood tests from that arm, that is where my lymph nodes were removed. She still keeps on taking blood and then wants to put a pic in the same arm! No counseling offered even though its an aggressive type. No help where I can go for funding. The same hospital that admited that they saw the tumor back in August in my mammogram, but chose to not tell me and keep an eye on it instead! Only did something when I, ME, found the lump in November. The SAME hospital that was under Provincial investigation Feb 27th. I am scared!

There must be some way of having your complaints investigated?![]()

Every hospital should have a patient advocate. There is also a Provincial Ombudsman.

So I cashed out. I also have a retro active cheque for dietary allowance showing up in my bank account Tuesday. With the combination of the two, I can close my GoFund me account. I want to thank EVERYONE, who donated, and listened to me. And I want to thank Bryan for allowing this. I meet with my surgeon again on the 24th. Apparently in the turndown letter from Princess Margaret Hospital, there is a list of other centres. My guess is I will be sent to Hamilton. Again thank you
<3Hi everyone. Yesterday I was feeling pretty crappy, broke and no family here for Easter. Last night I had 25 free spins on my favorite slot Gemix from VS so I played it. Today i hit 758.00 on a 50 cent spin!So I cashed out. I also have a retro active cheque for dietary allowance showing up in my bank account Tuesday. With the combination of the two, I can close my GoFund me account. I want to thank EVERYONE, who donated, and listened to me. And I want to thank Bryan for allowing this. I meet with my surgeon again on the 24th. Apparently in the turndown letter from Princess Margaret Hospital, there is a list of other centres. My guess is I will be sent to Hamilton. Again thank you
<3
Side note. The whole banking process has changed at VS for Canadians

What a wonderful result Jen. Things are beginning to look up for you![]()
I will have 33 treatments of radiation, everyday Monday-Friday. My first appointment is April 26th, I will meet the radiation oncologist and my team. Measured and tattooed. As far as chemo goes, they will wait until my bone scan on the 27th is done to see if its needed. Each radiation will take about 10 min so I sent a request in to go back to work part time on May 1st. I can't believe 3 months have past since this all has started and in 3 months I can start paying into my benefits 
Hi jen
I think it's a good idea if you can work through your radiation sessions. It will keep your mind of things. It gets tough at end cuz radiation effects are cumulative. But it's mostly tiredness. So please be careful. It will be ok. And you will be too. Just breathe.
I just want to get back to work, and they are open late so that is a plus! I hope all is well with you.
The room I will be in is very creepy but they have mics. This morning I went for my shot and have to go back at 12:00 for bone scan. And I start back to work part time Monday, but a different department. YAYYY! So starting radiation Monday and work
Hope everyone is doing good. I am also gaining a bit of weight finally. When I get looking a bit better I will post the pic of me after surgery that Jazzy saw and now. See the difference
Thanks for being there guys <3
It took 3 people to get me in the house that day. I know it looks like I have no teeth, but I do
That was on Feb 28th. My son is home and took the second one yesterday. Two months later! I cut my hair and put it back to its normal colour, just a wee bit darker.

So I said I would post pictures. The first one ( excuse my attire) is quite shocking! My daughter took it a couple of hours after I got home from surgery, she wanted me to see how bad I looked.It took 3 people to get me in the house that day. I know it looks like I have no teeth, but I do
That was on Feb 28th. My son is home and took the second one yesterday. Two months later! I cut my hair and put it back to its normal colour, just a wee bit darker. View attachment 77992 View attachment 77993
The blue tinge to me is from the nuclear dye they inject you with to find your lymph nodes.
I hope that your works going ok?That's quite a transformation JenI hope that your works going ok?
Thanks. I'm training and only a few hours a day. Its been actually very over whelming, Im exhausted from the radiation and trying tp pay attention in training plus working on the website. My days are turning into 16 hour days. So basically I am back where I was before I knew I was sick, and that isn't a good thing. How have you been?

