1. By continuing to use the site, you agree to the use of cookies .This website or its third-party tools use cookies, which are necessary to its functioning and required to achieve the purposes illustrated in the cookie policy.Find out more.
    Dismiss Notice
  2. Follow Casinomeister on Twitter | Facebook | YouTube | Casinomeister.us US Residents Click here! |  Svenska Svenska | 
Dismiss Notice

Poll:Best Screenshot of the Month?



Candidates Revealed...Cast your vote!.
Dismiss Notice
REGISTER NOW!! Why? Because you can't do diddly squat without having been registered!

At the moment you have limited access to view most discussions: you can't make contact with thousands of fellow players, affiliates, casino reps, and all sorts of other riff-raff.

Registration is fast, simple and absolutely free so please, join Casinomeister here!

To the person of a NEED help!

Discussion in 'The Attic' started by Perez777, Oct 27, 2014.

    Oct 27, 2014
  1. Perez777

    Perez777 Experienced Member

    Occupation:
    Online poker player
    Location:
    Russia,Yaroslavl
    Friends, at one large poker forum of people from Russia asks about the help. It needs to contact somehow electronically Stephen Hawking.

    I know, what there are people from Uk.Maybe, you will help?

    Matter of life and death

    I will copy the text:

    Hello, Mr. Hawking. My name is Ildar, 35 years old and I have the same disease as yours, ALS. If you can, please, tell me your opinion about this illness. I’m from Russia and our healthcare system can't help me anymore. I contact you, Mr. Hawking, in hope that you know some things that really can prolong the life of people like us or maybe you know some medicine which actually works? Because i very much want to live as long and active as you and do many useful things not only for myself!

    I've been living with ALS for about 6 years now and it's getting worse every day. Please, reply to me here .
     
  2. Oct 27, 2014
  3. Perez777

    Perez777 Experienced Member

    Occupation:
    Online poker player
    Location:
    Russia,Yaroslavl
    Its health worsens every day, it is already heavy to it to write independently
     
  4. Oct 27, 2014
  5. petro

    petro Dormant account, per user request PABnoaccred2 PABaccred

    Occupation:
    N/A
    Location:
    Narnia
    Seems like a joke. Whoever this is should be able to get as much advice from Russian doctors as they can from Mr. Hawking.
     
  6. Oct 27, 2014
  7. Perez777

    Perez777 Experienced Member

    Occupation:
    Online poker player
    Location:
    Russia,Yaroslavl
    In Russia the answer is simple: The illness is incurable.

    Where joke? To you it is ridiculous?
    Possibly, you weren't in such situations yet. After all the karma can overtake everyone
     
  8. Oct 27, 2014
  9. homerbert

    homerbert I-Gaming Industry Representative webby

    Occupation:
    nothing :)
    Location:
    middle of Europe!
    it's not Australia, simple answer like that :(
    but still looks very strange, but who knows..
     
  10. Oct 27, 2014
  11. BingoT

    BingoT Nurses love to give shots webmeister

    Occupation:
    Nursing & Run Bus Trips
    Location:
    Hartford,Ct
    I did my part in ALS.
    I donated & did the als "ice bucket challenge"
    I wish you all the best.
     
  12. Oct 27, 2014
  13. Perez777

    Perez777 Experienced Member

    Occupation:
    Online poker player
    Location:
    Russia,Yaroslavl
    homerbert

    Вы русскоязычный:)

    Вот само обращение:
    To the person of a NEED help!: fb1f19796940abe798b2da92308668aa.png,Oct 27, 2014
     
  14. Oct 27, 2014
  15. BingoT

    BingoT Nurses love to give shots webmeister

    Occupation:
    Nursing & Run Bus Trips
    Location:
    Hartford,Ct
    English Please Thank You
     
  16. Oct 27, 2014
  17. homerbert

    homerbert I-Gaming Industry Representative webby

    Occupation:
    nothing :)
    Location:
    middle of Europe!
    ok, on screenie post of user on russian at biggest poker forum(pokerstrategy).
    User described that he really optimistic, and he want to fight against his ill, but doctors have no idea how to help him. Since Stephen Hawking most famous human with this ill, and living with it for 40+ years, he trying to get contact with him by any way. His english terrible, and he asking help.
    Not sure how thread here can help him :(
    Probably best way is found some contacts to Stephen, help user translate it to good english, and send it. Can't see any other way.
    P.S. Sad story :(
    P.P.S. Perez777 постарайся пожалуйста не постить ничего на русском, этого никто не любит на не русскоязычных форумах. (just ask to use english language).
     
  18. Oct 27, 2014
  19. Perez777

    Perez777 Experienced Member

    Occupation:
    Online poker player
    Location:
    Russia,Yaroslavl
    BingoT

    Hi, everybody!
    In the summer the charity event Ice Bucket Challenge was popular, and the whole world had amicably a shower bath water, someone was simply promoted, someone really endowed funds for charity, and the third didn't understand at all, why they have a shower bath, thinking that it is such world entertainment. But is closer to a subject.
    My name is Ildar, I am 35 years old (tomorrow it will be executed), and I here am ill 6 years the lateral amyotrophic sclerosis (LAS). The illness artful who wants learn in more detail can on be googled, but I will explain in brief: Something kills nervous cages (motor-neurons) responsible for the movement of muscles, and the person slowly turns into "vegetable", but intelligence thus as doesn't suffer. Someone for 3-4 years burns down, and someone lives more than 10 years. Not clearly with what life term about the BASS is connected, but my version that optimists live more long. Now I will explain what sort the information help is necessary:
    First. As doctors consider the BASS as an incurable illness, would be big achievement to stop its progress.
    The most famous patient the BASS is English astro - the physicist Stephen Hoking, and he is already ill the BASS more than 40 years, and I am sure that somehow to it (and his assistants) managed to stop an illness.
    Also famous astrophysicist in poker community is Liv Boeree, they live in one country, and she perhaps even is personally familiar with Stephen Hoking. But my problem why I can't will address to Liv, I don't know English language at all. I already asked in the winter for help at known for all Mischa Shalamov's poker strateg in the twitter, but whether he didn't understand me whether that, it is shorter left my messages without answer. Maybe who from forumites will show it this message and it will be able to help this time.
    And secondly. Many know the facts about wonderful healings, who something knows everything about any sorcerers magicians, psychics and other healers, write. But only the facts are necessary!
    Well here, it seems, and all. All in advance many thanks and mega wins!!!!
     
    1 person likes this.
  20. Oct 27, 2014
  21. Perez777

    Perez777 Experienced Member

    Occupation:
    Online poker player
    Location:
    Russia,Yaroslavl
    homerbert
    ok,no problem:)
     
    1 person likes this.
  22. Oct 27, 2014
  23. vinylweatherman

    vinylweatherman You type well loads CAG MM

    Occupation:
    STILL At Leisure
    Location:
    United Kingdom
    It is incurable here too. Prof Hawking was told by doctors he would die young. Somehow he has defied the odds and made it into his 60's. He is now completely paralysed apart from a single cheek muscle. He needs 24/7 personal and medical care, but his brain is not affected, hence his ability to pursue ground breaking theoretical physics. What he knows can probably be found on Google, although a medical degree might be necessary to understand much of the scientific literature.

    However, it has been done before. There has been a case where the parents of a child suffering a rare disease refused to give up when the doctors said there was nothing more they can do. They took it upon themselves to research the disease and gain medical qualifications sufficient to understand what they had found. They then conducted their own research, eventually discovering a brand new treatment that was previously unknown to medicine, and managed to treat their child. It wasn't a cure though, but it enabled their child to live much longer and with a better quality of life.

    The real problem is that discovering a new treatment is just the start. Often, the public health services won't fund such treatment until it becomes mainstream. A way around this is to monitor what is going on, and then volunteer for some clinical trials. The big pharmaceutical companies will cover the costs of treatment in order to gain valuable data regarding a new treatment. If the treatment works, it's a way to get access to it some years before it becomes used more generally, but the risks are higher as these trials are also designed to look for potentially dangerous side effects which might mean the treatment never makes it past trials and into general use.
     
    3 people like this.
  24. Oct 27, 2014
  25. prindi

    prindi Senior Member

    Occupation:
    huh?
    Location:
    Valencia, CA
    This might be helpful

    You must register/login in order to see the link.

    Best part is that there is a pull down menu with language options!
     
    1 person likes this.
  26. Oct 27, 2014
  27. BingoT

    BingoT Nurses love to give shots webmeister

    Occupation:
    Nursing & Run Bus Trips
    Location:
    Hartford,Ct
    This webpage is not available
     
  28. Oct 27, 2014
  29. Perez777

    Perez777 Experienced Member

    Occupation:
    Online poker player
    Location:
    Russia,Yaroslavl
    working link
    You must register/login in order to see the link.
     
    2 people like this.
  30. Oct 27, 2014
  31. suzecat

    suzecat Dormant account CAG MM webmeister

    Occupation:
    Retired
    Location:
    California
    Stephen Hawking has a Facebook page!!! That would be an easy way to direct questions to him. He has a team to help with the quantity of FB questions asked, might work for the person with ALS.
     
    1 person likes this.
  32. Oct 27, 2014
  33. vinylweatherman

    vinylweatherman You type well loads CAG MM

    Occupation:
    STILL At Leisure
    Location:
    United Kingdom
    Here is the Wikipedia article about the case where the parents went from laypersons to researchers who developed a new treatment for their child's "untreatable" disease.

    You must register/login in order to see the link.
     
  34. Oct 27, 2014
  35. suzecat

    suzecat Dormant account CAG MM webmeister

    Occupation:
    Retired
    Location:
    California


    Susan Sarandon starred in the film, Lorenzo's Oil, about these parents and their tireless efforts to help their son. Extraordinary story and film.
     

Share This Page